Boini, Stéphanie Briançon, Serge Guillemin, Francis Galan, Pilar Hercberg, Serge
Published in
Health and Quality of Life Outcomes
BackgroundInvestigations focusing and implementing on the impact of cancer on health-related quality of life (HRQoL) by the way of a mean comparison between cancer patients and subjects from the general population, are scarce and usually cross-sectional. Longitudinal application of HRQoL instruments to a general, initially healthy population allows...
Baayen, Corine Feuillet, Fanny Clermidi, Pauline Crétolle, Célia Sarnacki, Sabine Podevin, Guillaume Hardouin, Jean-Benoit
Published in
Health and Quality of Life Outcomes
Background: The Hirschsprung's disease Anorectal malformation QoL questionnaire (HAQL) is a disease-specific quality of life (QoL) questionnaire for patients with Hirschsprung's disease (HD) or anorectal malformations (ARM). It was originally proposed in Dutch and is currently being translated into other languages to obtain an internationally stand...
Anota, Amélie Bascoul-Mollevi, Caroline Conroy, Thierry Guillemin, Francis Velten, Michel Jolly, Damien Mercier, Mariette Causeret, Sylvain Cuisenier, Jean Graesslin, Olivier
...
Published in
Health and Quality of Life Outcomes
BackgroundThe occurrence of response shift (RS) in longitudinal health-related quality of life (HRQoL) studies, reflecting patient adaptation to disease, has already been demonstrated. Several methods have been developed to detect the three different types of response shift (RS), i.e. recalibration RS, 2) reprioritization RS, and 3) reconceptualiza...
Gasquet, Isabelle Villeminot, Sylvie Estaquio, Carla Durieux, Pierre Ravaud, Philippe Falissard, Bruno
Published in
Health and Quality of Life Outcomes
BackgroundFew questionnaires on outpatients' satisfaction with hospital exist. All have been constructed without giving enough room for the patient's point of view in the validation procedure. The main objective was to develop, according to psychometric standards, a self-administered generic outpatient questionnaire exploring opinion on quality of ...
Quittner, Alexandra Suthoff, Ellison Rendas-Baum, Regina Bayliss, Martha S. Isabelle Sermet-Gaudelus Castiglione, Brenda Vera-Llonch, Montserrat
Published in
Health and Quality of Life Outcomes
Background: Cystic fibrosis (CF) is an inherited, rare autosomal recessive disease that results in chronically debilitating morbidities and high premature mortality. We evaluated how ivacaftor treatment affected CF symptoms, functioning, and well-being, as measured by the Cystic Fibrosis Questionnaire-Revised (CFQ-R), a widely-used patient-reported...
